tag:blogger.com,1999:blog-75921064331495424472024-03-13T20:46:24.551-07:00FFASBFFASB - FÉDÉRATION FRANCAISE DES ASSOCIATIONS DU SPINA-BIFIDAFFASBhttp://www.blogger.com/profile/15936117178170146983noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7592106433149542447.post-11503118145571555522014-02-10T04:07:00.001-08:002016-06-14T13:37:50.669-07:00<div style="text-align: center;">
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<![endif]--><span style="color: red;"><b><span style="mso-fareast-font-family: "Times New Roman";">L'association
Spina Bifida Rhône Alpes lance à partir de cette semaine un certain nombre de
pétitions pour la défense des droits des personnes en situation d'handicap.</span></b></span><br />
<br />
<br />
<span style="color: red;"><span style="mso-fareast-font-family: "Times New Roman";"> </span><b><i><span style="mso-fareast-font-family: "Times New Roman";">La
première pétition concerne la prise en compte des frais professionnels
pour le calcul de l'AAH par les CAF.</span></i></b></span><br />
<br />
<span style="color: red;"><span style="mso-fareast-font-family: "Times New Roman";"> </span><b><span style="mso-fareast-font-family: "Times New Roman";">Soyez
nombreux à la faire signer et à la faire suivre.</span></b></span><br />
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<b><span style="mso-fareast-font-family: "Times New Roman";"> </span><span style="font-family: "times new roman" , "serif"; font-size: 12.0pt;"><a href="http://www.mesopinions.com/petition/social/prise-compte-frais-professionnels-calcul-aah/20419" target="_blank"><span style="font-family: "arial" , "sans-serif"; font-size: 10.5pt;">http://www.mesopinions.com/petition/social/prise-compte-frais-professionnels-calcul-aah/20419</span></a></span></b><!--[if gte mso 9]><xml>
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<span style="font-family: "trebuchet ms" , sans-serif; font-size: x-large;"><i>
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<br />
<div style="text-align: center;">
<span style="font-family: "verdana" , sans-serif;">La Fédération Française des Associations du Spina Bifida a été<span style="font-family: "verdana" , sans-serif;"> </span>créée<span style="font-family: "verdana" , sans-serif;"> </span>et déclarée le 30 mars 1994, à la préfecture de Toulouse</span><br />
<span style="font-family: "verdana" , sans-serif;"> (parution au Journal officiel du 20 avril 1994).</span></div>
<span style="font-family: "verdana" , sans-serif;">Actuellement, elle est la seule association représentante officielle des Spina Bifida français auprès des instances, françaises et européennes (depuis le congrès européen de Hollande en 1994) ainsi qu'internationales depuis le congrès de Sydney (Australie) en septembre 1995.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">Objet de la Fédération</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">- Regrouper les différentes associations locales, départementales ou régionales déjà crées ou en création, concernant les personnes atteintes de spina bifida et/ou de pathologies liées.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">- Apporter les informations nécessaires au niveau national et international sur le plan médical et social.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">- Remplir toutes les missions de service public qui lui seraient confiées.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">Pourquoi ce site?, pour qui?</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">Ce site se veut être un espace d'information, de discussion, d'échanges fructueux, entre toutes les personnes qui sont confrontés à ce handicap, soit de par leur vie quotidienne:</span><br />
<span style="font-family: "verdana" , sans-serif;"><br />
</span> <span style="font-family: "verdana" , sans-serif;">- En tant qu'adolescent ou en tant que parent ou ami (e) d'un enfant/jeune adulte handicapé...</span><br />
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</span> <span style="font-family: "verdana" , sans-serif;">Soit de par leur vie professionnelle:</span><br />
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</span> <span style="font-family: "verdana" , sans-serif;">- Médecin, professions médicales et paramédicales, éducateurs, chercheurs en sciences humaines...</span><br />
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</span> <span style="font-family: "verdana" , sans-serif;">Qui que vous soyez, cher internaute, nous espérons que votre visite sur ce site vous sera agréable, et que vous y trouverez ce pour quoi vous nous avez fait l'honneur de votre visite.</span><br />
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</span> <span style="font-family: "verdana" , sans-serif;">Avant de vous laissez surfer au gré de votre humeur sur ce site, nous vous rappelons que notre plus grand souci est que cet espace soit le votre, aussi, surtout n'hésitez pas à posez vos questions de tout ordre, de nous faire part de vos suggestions et impressions afin d'améliorer Votre Site.</span><br />
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</span> <span style="font-family: "verdana" , sans-serif;">NB: Ce site n'a pas la prétention de vous donner une information exhaustive concernant le spina bifida, mais simplement quelques "points de repère". Pour de plus amples informations nous vous incitons à consulter notre page "<a href="http://ffasb.blogspot.fr/p/blog-page_5057.html">Nos liens</a>" ainsi que de prendre contact avec nous!</span>FFASBhttp://www.blogger.com/profile/15936117178170146983noreply@blogger.com